Le Courrier Médical et Psychiatrique de Kinshasa

HANDBOOK FOR THE EVALUATION

 

     HANDBOOK FOR THE EVALUATION

 

 

                        OF THE

 

 

QUALITY OF LIFE IN THE SCHIZOPHRENIC

                                                                                                

 

 

 

**** Department of Psychiatry

**** Clinical care service.

**** Chainama Hills College Hospital

         Board of Management

**** LUSAKA/ZAMBIA  

 

 

 Acknowledgement

 

 

We are grateful to the following persons for their various contributions:

 

Dr M. Zulu, Executive Director - Chainama Hills College Hospital Board of Management (CHCHBM), Lusaka - Zambia, for her motherly heart with which she has been attending to our various problems,

 

Dr P.C. Msoni, Consultant Psychiatrist -Director Clinical Care, Chainama Hills College Hospital Board of Management, for his cheerfulness, friendship and understanding,

 

Pr Haworth, for his moral support as a good family father,

 

Pr Kinsala Ya Bassy - Neuropsychiatrist, Head of Psychiatric Department, University of Kinshasa, for his valuable scientific contribution to this work,

 

Mampinda Voltaire, Senior Customs Expert-COMESA and Ankiba Nestor - Fuels & Lead Country Manager EXXOMOBIL for their logistical support,

 

Dr Yassa – Consultant Dermatologist - University Teaching Hospital, Lusaka - Zambia, Dr Sheik - Registrar, CHCHBM, Mr. Abraham Mulenga, Clinical Officer, CHCHBM and Dr Tchikara – Consultant Psychiatrist - Parirenyatwa Hospital, Harare-Zimbabwe, for having facilitated and created in various ways an enabling environment for my work,

 

We would also like to extend our gratitude to all the nurses, clinical officers and general workers of CHCHBM for their various contributions to the realization of this piece of work.

 

 

The Authors

 

Dr J.Kaswa KASIAMA (MD)

                 

Senior Lecturer, secretary of the department of Psychiatry, in charge of teaching,

Neuropsychiatrist

University of Kinshasa

Former Deputy Director, Neuro-Psycho-Pathological Center - University of Kinshasa – D.R.C.

Senior Registrar - Chainama Hills College Hospital Board of Management

Department of Psychiatry, Lusaka - Zambia

 

Kawele Allan

                                             

Bsc Comp. Sc., MA Leadership and Org. Mgt., MCSE, CCAI

Lecturer- ICT                                        

Katanga Methodist University,

Evelyn Hone College,

UNZA-Cisco Centre

Lusaka-Zambia

 

Pr. S. Mampunza Ma Miezi (MD)

                

Former Director, C.N.P.P., University of Kinshasa – D.R.C

Professeur Agrégé

Neuropsychiatrist

Faculté de médecine - Université de Kinshasa – R.D.C.

 

Dr. Kaswa Kayomo M. (MD)

Clinical Mycobacteriology Laboratory,

David Axeirod Institute

Albany, NY 121208

Science in the Pursuit of Health 

USA

 

Pr. Odimba Bwana–Fwamba–Koshe E.,

                 

MD MPH MGS MSC PHD of Paris,

Ordinary Professor, Former Dean School of Medicine Unilu – D.R.C.

Consultant Surgeon / University Teaching Hospital, Lusaka - Zambia

 

 

Foreword

 

 

Chainama Hills College Hospital Board of Management:

A third level psychiatric hospital, which has the mandate to Provide:

 - quality mental health services,

 - training of primary health care providers 

 - impacting clinical psychiatric acumen to students from health colleges and the university of Zambia,

 - conducting research.

The hospital was built in 1961 with the bed capacity of 260 patients.

It was officially opened on the 20th June 1962

It consists of six wards, including a fee-paying ward.(A ward), B and C wards as acute admission wards, E and F wards as rehabilitation wards male and female and children respectively and L ward for  forensic patients, Chainama east in 1967,

built to admit medical forensic patients.

Since 1968 the hospital had a bed capacity of 500 patients.

 

Suffering due to chronic diseases is often associated to real-life experience, that feeling that the patient has of loosing control over his own life, a feeling that is often strengthened by the fact that the entourage and the physicians do not take his personal impressions into account.

 

Indeed, the latter’s pay attention to clinical signs and symptoms, whereas for the patient, leisure, joys of life and activities come first. Moreover, he complains about his therapist who ignores his subjective experiences, which are yet at the base of decisions concerning his treatment; a breakdown can be brought about by the divergence between the clinician and the patient’s expectations.

 

The evaluation of the quality of life of the schizophrenic (EQLS) patient is a complete self-evaluation measure made to give a review of the aspects of the quality of life relating to health affected by schizophrenia.

 

Hopefully this handbook will serve as reference for the level of quality of life of the schizophrenic patients in our psychiatry department.

 

 

The handbook includes the following points:

Problems and objectives

Schizophrenia

 

 

Development of the evaluation scale of the quality of life

Psychometric comparison of instruments

Constructing the questionnaire

Evaluation scale of the quality of life of the schizophrenic (EQLS)

Scoring formula

Handbook for the investigator

Conditions of administration

 

 

 Dr SHEIK  M.D.

 

Chainama Hills College Hospital Board of Management

 

 

 

 

TABLE OF CONTENTS

 

 

ACKNOWLEDGEMENT………………………….3

THE AUTHORS……………………………………5

FOREWORD……………………………………….9

 

 

Pages

CHAPTER I: Problems and objectives…......….……………………………….

 

17

The problem……………………………………

18

Real-life experience and quality of life….….

20

What are we looking for?……..…....……….

23

Objectives………………………………...…

24

 

 

CHAPTER II : Schizophrenia …………..……..

27

Target population …………...…………… ..

28

Epidemiological definition………………….

29

Taking charge of medical care………………

31

 

 

CHAPTER III : Development of the evaluation  of the quality of life…………………………

 

33

Quality of life in schizophrenia…………....…

34

Specific instruments ……………........………

36

Properties to be observed………...…………..

37

 

 

CHAPTER IV : Psychometric comparison………

 

45

Choice…………………………………...…..

46

Psychometric comparison of instruments...…

49

 

 

CHAPTER V :  Constructing the questionnaire.. .

51

Stage I: Conception of the questionnaire……..

53

Stage II: Constructing the questionnaire....…..

57

Stage III: Forming an evaluation scale of the

 

quality of life of the schizophrenic…..........….

58

 

 

CHAPTER VI : Evaluation scale of the quality 

 

of life of theschizophrenic(EQLS).…………....…

59  

Health…..…………………….……………….

61

Psychic symptoms ……....…………………...

61

Self-esteem / well-being……………………..

62

Relation with family……….....………………

63

Social and love relationships ….…………….

64

Leisure / creativity……………………………

64

Participation in community life ......………….

65

Religion……………………………….………

68

Financial situation…..…...……………………

67

Living conditions …………………………….

68

 Autonomy.……………………………...……

69

 

 

CHAPTER VII : Scoring formula............……….

71

For an item……………………………..…….

72

For a field…………...

72

For a scale…………………………….………

73

 

 

 

CHAPTER VIII : The interviewer’s handbook…..

 

75

Age …………………….………….....……….

76

Sex……………………………….......……….

76

Residence in Zambia (province)……………..

76

Ethnic groups……………………………..…..

77

Real-life experience and report……………….

79

Stabilisation and report …………….......…….

80

Typical questions …………………………….

81

 

 

CHAPTER IX : Condition of administration ……

83

The patient’s consent ………………........…...

84

Enlightened free consentement……………...

84

Precautions to be taken ………….…..………

84

 

 

REFERENCES………………………….……….

87

 

                                                                  

 tag: handbook, for, evaluation, schizophrenic

 

book in:

 

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16/07/2011
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